Hot Dogs for Breakfast, really?

Dear Connor's appetite,

We appreciate you being back in Connor's life. We know how important it is for his body to get the nutrition he needs. We know that since you've been back in his life this week he has been enjoying food all day long. We never know how long you are here to stay, so we will appreciate you while you are here.

P.S If you have a chance to speak with Connor's cravings, could you please ask him if he can mix up the "Hot Dogs" for breakfast craving ?

Thanks!

It was so nice to see some sun this weekend (now it is gone again). We enjoyed our first spring/almost Summer Barbecue over the weekend. Connor also enjoyed his class field trip to the zoo last week. It was so fun seeing the kids from class, and also seeing the animals at the zoo. We haven't been there since treatment started.

This is the last week of School for Connor's class. It was been such a busy year for them. They have learned so many things. I couldn't have asked for a better homeroom for Connor this year. Although he spent very little time at school, he always felt connected to his class. His teacher did an amazing job of keeping him connected. The kids were so thoughtful and were really kind.

They also did a fantastic job of taking care of "Monkey Connor". I've started a new page on this blog and there is link to the right, that will highlight some of Monkey Connor's adventures during the Summer.

We were given a reprieve from Clinic today. With Connor's counts going up it's safe to say we should have a relatively "normal" week around here. His next cycle of Chemotherapy is scheduled to start on the 21st (overnight stay and Audiogram). We're hoping for high counts (to avoid delays), and continued good audiogram results (thanks for the prayers and good thoughts).

Tomorrow is a big day for Connor, and one of mixed emotions. During the day we are going to visit his 1st grade class for the last time, and In the evening the "Make a wish foundation" will be sending a representative out to our home, so that Connor can make his wish.

As we started this "Quest to battle a Brain Tumor", we started out with A LOT of unknowns. We have become experts in some of the unknowns, mostly we are still fumbling around as novices. Unfortunately a lot of this process involves "flying" by the seat of your pants. You make a lot of decisions that you "think" are the best. There aren't too many comparables, since "everyone is different". So a lot of your decisions are based on "what will work out best for your child, and your family, right now".

We've had to make a lot of big, scary, hairy, tough decisions (and I'm sure there will be many more to make). Although I haven't posted many of those internal discussions on this blog, they have existed. There have been many sleepless nights, many tear filled moments of clinging onto to hope that you are making the "right" decision. We've come to grips that there are many "right" decisions out there, and although our decisions may not be "right" for someone else, they are "right" for us, "right" now.

Any regular reader here knows how fond we are of Connor's teacher. Her tutoring has been a blessing for Connor this school year. She is dynamic. I had complete trust in her, and never doubted that Connor's education would suffer in her hands. She pushed him, when she needed to push him, and most importantly she encouraged his love of learning even when he wasn't in a "Classroom".

The last thing a parent whose child is facing an illness like this wants, is more worry. Will my child lose his friends, will he forget his academics, will he fail to learn new skills, will he be depressed from all the changes, will he be forgotten while he's away? She walked with us for all these worries, and helped us battle them side by side.

Greg and I have had many discussions about Connor's education for this upcoming 2010-2011 School year. With treatment continuing until the end of year, Connor is faced with missing a large part of his second grade year. With heavy hearts we have decided to enroll him a local charter school this year. Although we are saddened he will be leaving his friends, school and staff at Grant Watts we are excited about the flexibility that this program will provide him and our family as we complete Connor's treatment. The charter provides a complete home bound curriculum, and access to a teacher for weekly tutoring. After Connor completes chemotherapy, we can focus on getting him strong and back to his regular school. It's a right decision, for our family, right now.

Well Someone is craving another Hot Dog! so I better wrap this up.

Thanks again for everyone's continued support. We'd love to hear about what "you" are doing this Summer. Please remember to stay in touch!

Neglected far too long

Wow, I feel so guilty about not writing an entry in so long. The Chinese fortune I received last week told me that I needed to write a letter to someone important (There are too many important people in my life to choose from), so here you go!

Dear Friends of the Blog,

Thanks so much for checking up on Connor, I apologize for neglecting this Blog. Lately it feels that our events are un-blog worthy, but I know that the events are important to some.

Our spring weather has been full of rainy days. Everyone can blame Greg. The day after he installed our drip system it has been raining since (He must have connections).

On a positive note, I haven't had to water the yard, and this morning, the sky looks absolutely beautiful.

Connor's treatment in May was delayed. After a weeks delay he received his treatment with another dose reduction. The hope is that, the dose reduction will allow him to recover faster, to avoid future delays in treatment. We're beginning to see how his body trends during each cycle. We're learning which weeks we have the "best chance" of him feeling well, and where his blood counts will potentially be the highest (still not always high enough for many of the activities that he would like to participate in, can you say Chuck-E-Cheese germ factory??)

This cycle was unusual, his counts continued to go up while receiving his chemo medication, and didn't start to fall down until the end of week 3. He was able to go to school and visit with his friends (always a highlight in his book, and mine).

His Teacher also celebrated summer birthdays, so we were able to bring in some sugary sweet treats (sorry parents) to share with the class. As an extra bonus Connor's Chemo Pal Nick came to school to celebrate with him. I have to admit this was a little confusing for Connor. He wasn't quite sure why he was "Celebrating" his birthday, when it wasn't his birthday, but he certainly didn't display any confusion when it came to eating a cupcake.

Miss Horn's class was very successful in raising money for the Love Chloe foundation.

They had two successful Lemonade Stands, and raised enough money to purchase 7 kits. Thank you so much to all of our friends for coming out and supporting this venture. It was so nice to see familiar faces of those who mean so much to us.

The Monkey in my chair program has been so important for us. Not only does it serve as a way for Connor to feel connected to his class, it also provides a way for the class to stay involved and in touch with him while he's away.

The Big stuffed monkey sits in Connor's chair while he's away, and the class takes "Monkey Connor" to their activities. There is a "School to home" backpack that can be used for notes, drawings or cards. The package comes with a beautiful book that talks about "Why" there is a monkey in the chair, and a journal that records "Monkey Connor's" activities. Monkey Connor was VERY busy this year. He did lots of fun things as you can see:

As this school year dwindles to an end, I think it's appropriate that I say a few words about Connor's teacher this year. To put it bluntly, and in Connor's terms "Miss Horn Rocks!". There are so many unknowns in this process, but something that has been consistent has been Connor's teacher. She has been flexible, she has been compassionate, she makes him (and us) laugh, and she knows how he operates, she makes him feel successful. She has been a very important part of his (our) recovery. Not only has she been there for home tutoring, but she has also kept him connected to his class. She's gone above and beyond to incorporate health safety, acceptance for others, and compassion in her classroom. She's given these children lesson's that are not required on the state standardized tests, but life lessons that will continue to reward them forever.

Entering Connor's first grade classroom (even with some of it's craziness) provides me with a reality check in life. These children are good. They are driven, they are eager to learn. They exude life. They have the capacity to love unconditionally. There is so much opportunity there. Each one is like a little present waiting to be opened.

Memorial Day Weekend provided us with some time to get away from clinic. We were given a week off from blood checks (Greg was thrilled to be given a week off of clinic I was a little more apprehensive but I took pleasure in my husbands excitement).

Connor's choice for Memorial Day Weekend fun? Well let's see.. it couldn't be anything like lounge around and do yard work (so sorry neighbors,we'll get to it at some point), or have a BBQ in the backyard, NOPE.... He chose CAMPING! Anyone ever try to make reservations for camping the Friday of Memorial Day Weekend? Well we lucked out, found a place within a 1 1/2 hour drive to clinic (in the event we had an emergency) that had availability.

We were able to visit the Mt. St. Helens Visitor Museum, which we all thoroughly enjoyed (wasn't too crowded, and gave us an escape from the rain). I was so proud of my kid (and Greg), he sat through the whole educational video, about the history of Mt. St. Helens. He looked and read all of the exhibits, and on top of that wanted to stay to listen to the rangers presentation. He listened and even participated in the questions and answers portion. It was very informational, and quite interesting.

Unfortunately good things are sometimes cut short. Greg (I mean Connor) did not get his week off of clinic. Connor started presenting signs of anemia on Wednesday, so we headed down for a blood draw, and a blood transfusion. It took 6 hours, but on the positive side we didn't have to stay the night!

Connor has been working hard on on his Therapy. One of the best things we have done was change his Therapy to a private practice. We are SOOO PLEASED with Therapy Solutions for kids (I've added their link to this page as well). I really feel that they are the best of the best. Connor got fitted for leg braces to wear at night, to keep his Achilles tendon flexible. He thought this was pretty cool, to have something "Custom" made for him, He even got to select custom velcro straps (Flames and stars of course). It's nice to work with people who are familiar with the effects of these drugs, and who can offer proactive suggestions to limit some of the nasty side effects.

Everyone has been asking about our Summer plans. I hate to be pessimistic, but it is so difficult to plan anything during treatment. Some of the things we would LIKE to do are: Do some more camping (Connor loves it so much, even though it's wimpy camping in a tent trailer lol), spend some time at the park riding Connor's bike, and we have a weekend trip planned to the Seattle area. Other than that, we'll just be enjoying life, enjoying each other, soaking up some sun (with ample skin protection!!!!).

In the works: Connor's working on a Dinosaur movie (and I am working on finding a way to edit it, we will need to add sounds, and a voice over. If anyone has experience with this, or knows of a free online program please let me know! My High school T.V production days are a little rusty lol). We would love to have a private screening this summer (followed shortly by a down-loadable version).

Well that's about all folks. I think I've covered it all. I'll be better about future updates.

Thanks for stopping by.

Missy

P.S Extra big thanks for all the birthday wishes, cards and gifts!

Happy Mother's Day

Here's wishing everyone a Happy Mother's Day. Even if you don't have any children of your "own", if you have ever nurtured, raised, protected, tended to, cared for, or cherished a young child, here is a big .. thank you.





Dear Son,

Since you have been born, my hair has turned grey,
I forget what I was about to do several times a day.


I've gained some knowledge, in all things "boy",
Star Wars, Transformers (Are you sure Bakugan is really a toy?)


Your daredevil ways make my heart skip a beat,
I know at some point you'll remember to put down that toilet seat.


I know it's hard to believe, and might sound really strange,
But there isn't one thing about you that I would change.


Your mumbling, your grumbling, the way you drag your feet,
These things make you what you are,
They make you complete.


I want you to know that on this special day,
I'll take whatever comes my way,


No matter what, I'll always be your Mother,
I'll take the whole package,
I don't want any other.

Written by Melissa Solomon, for Connor Solomon Mother's Day, 2010.

Put a monkey in someone's chair

For their Service Learning Project this year, Miss Horn's first grade class, will be having a Lemonade stand. The money they raise will go towards providing a "Monkey in my chair" kit to another student with cancer. Monkey Connor has been a big part of their class this year and they would like to provide the same experience for another child in need.

http://www.monkeyinmychair.org/

WHO: Miss Horn's 1st grade class

WHAT: Lemonade Stand Fundraiser (50 cents a glass)

WHERE: Scappoose Middle School Bus Lane

WHEN: May 15th, Starting at noon

We hope to see you there!

So close, but not quite

We started the weekend off right with good news about Connor's scans. We celebrated my birthday on Saturday (again, Connor's favorite part was the cake). Sunday we had a nice celebration with friends with fun games and snacks.

Unfortunately Connor didn't meet his counts on Monday, and was unable to start his chemotherapy on time this round. He was so close. We are taking a week to build up his counts and will try again this coming Monday. Good news: his counts are up enough that we aren't shunned from crowded public places, so he will get to visit his friends this week at school for a little bit, and maybe we can catch a movie this week.

Great News!

Scans look good no new tumor growth.
Thanks again for all your positive thoughts and prayers!
Melissa

Don't malfunction

Connor had a Full Head and Spine MRI today. We left early in the morning (as we have done so many times now), it doesn't take us nearly as long to get out the door as it used to.Remember when you had a newborn and you packed a HUGE bag of stuff to bring with you? but eventually you realized you didn't need 85% of that extra stuff and you were able to downsize to a smaller bag? We've downsized.

Unfortunately even though we know the In's and Out's of the MRI process, it doesn't lesson the heavy burden on our hearts, and it doesn't erase the flash backs of the very first time Connor had one. We try and distract ourselves, while hoping for the very best results. Getting MRI's will be something Connor will continue to do until he's at least 18, we're learning that these feelings are just going to be par for the course.

I never thought things would start to get easier, but they truly have. We have started to settle into a routine, and there are many days we are almost able to "forget" that we are walking this path. We've been able to connect with support groups of other families that have children with similar brain tumor's. Some have completed treatment, some are just beginning, other's have lost their battle, but have so much information to offer, and are still fighting for others in the trenches.

A while back I wrote about what our "Normal" would look like, and although our "Normal" is unconventional, it's uncanny how similar it is to other's in the same situation. Other families of children with brain tumor's understand poor appetites, Anaesthesia induced "pirate" behavior, port access, ataxia, low ANC count and a multitude of other things associated with this illness. The road isn't as scary when you connect with other's who are walking the same path.

Our favorite anaesthesia nurse,returned from Maternity leave, and was there for Connor's MRI today. This Nurse was with us for SOOOO many of Connor's radiation treatments, and became very close to us. She supported us, and got us through many rough wake-up's. Seeing her today was very comforting. Connor was a trooper, requested bubble gum scent for his anaesthesia. We were able to get out of there in four hours.

Blood counts were still low this week ANC was 260 (he needs to get to 1,000 by Monday to avoid another delay & reduction), but on the positive side his hemoglobin counts are up so he didn't need a transfusion today.

Bad news, no flavored creamer in the MRI waiting room, in fact no Coffee in the waiting room. Too many people have spilled, so they have removed it. For those who don't know my husband: coffee flows through his veins, He does not operate without coffee. We were able to acquire some at the cafe to avoid him malfunctioning.

We are a little over 7 months into our journey, and half way though. We continue to be amazed by our dude. He really gives us strength.

What did you say? Today Connor asked our favorite nurse if she had a girl or a boy? (she had a girl), and what her name was??(Kate), and if she had cancer? (no she was happy and healthy) ... whoa back up, what an odd question. But favorite nurse didn't skip a beat (another reason we love her so) she gets it, she understands what these kids have gone through, and continue to go through.

So just some advice for other's starting out this path (in no particular order of importance):
1. Create a process that works for you and your family, and Keep it simple.
2. It does get easier, connect with people who have been there, it's ok to allow yourself to feel.
3. Don't worry about fitting your life into a mold, spend your time living a meaningful life.
4. Trust others who are sincere
5. Things won't always go the way you had hoped, but try to find the positive.
6. Don't forget to take care of yourself to avoid malfunction
7. Remember who you are doing this for, and how much they need you to be strong for them.

Tomorrow we have an audiogram, and we should find out the results from the MRI within a few days. We appreciate all the positive thoughts and prayers you are sending this way.

Connor Solomon on PhotoPeach

The sky was so beautiful this weekend.

Last Sunday we were saddened to hear that Greg's grandma (Bubu) Lillyan Solomon passed away. She was always so kind to me, and funny, and so beautiful. We will miss her greatly.

Connor had Chemotherapy on Monday. Just a day trip. This is his second week since his over night stay, and he's starting to slow down. Not much energy and tiring very easily. His appetite hasn't been that great, and he's been a little nauseous but he's still happy.

We had our IEP meeting with the school this week (Individualized education plan), the team agreed that he can qualify for Special education services (Due to his traumatic brain injury), this will be helpful for him to receive services and accommodations in school.

Saturday my friend Nikki invited me to dinner, and to a live version of Dreamgirls in downtown portland. It's been a long time since I've gone to a "real" theater production. It was amazing. The cast was so talented. Something about a theater to me, the smell, the lights, the hustle and bustle of the crowd, it reminds me of the good old days.

The boys enjoyed dinner out (Chinese, Connor's choice lol). He asked the waitress for an extra fortune for his Mommy (aww) .. it said "Listen these next few days to your friends to get the answers you seek." anyone have any answers? I'm always up for advice!

Sunday I spent almost all day digging in the dirt. It's so nice to get back in my yard. It's so therapeutic to me, quiet (for the most part), gives me time to think and reflect. Connor went pretty crazy picking out seeds this year. You would think we were homesteading. Connor helped me plant some petunias, and paint some stepping stones for the front yard.

We ended our weekend with a game of Yahtzee.

Monday confirmed our suspicions that Connor's blood count was down again, 330.
He's scheduled for a Brain and Spine Scan on Tuesday, please send your positive thoughts and prayers we will need all the strength we can get that day. Sitting in the waiting room on scan day is always grueling (even with the good creamer).

Again we send our love your, way.. thanks for checking on us!

Fun Family Activity

Connor had a blast dyeing Easter Eggs last Friday. He said "this is a fun family activity we should do it every Friday". On Saturday he was able to find all of his eggs (that bunny didn't make it challenging enough, but the Bunny probably felt rushed since the eggs were hid at 6:15 and Connor woke up at 6:45 phheww).

On Sunday we had a nice time with Friends, and enjoyed a fabulous Easter spread.

Monday we had our fingers crossed for high counts, however Connor was still low at 860. Connor went forward with treatment, but received a 50% reduced dose. This was our 1st 2 night stay at the hospital, and his 1st time receiving this chemotherapy drug. Most of the stay involved him receiving extra fluids and flushing his bladder and kidneys. He did really well, he was a real champ getting up throughout the night. We had some really great Nurses this stay, that always makes the stay better.

Connor participated in Arts & Craft night, had a movie night, played with his Chemo Pal, had some inpatient OT & PT, Played Hospital Bingo, Learned some new tricks from a visiting clown and went to Art Therapy. Pretty busy stay.

THE BEST NEWS IS: NO MORE MYSTERY MEAT
The hospital changed their meal service. You get to select your own foods from a menu. You call it in and it is delivered within 30-40 minutes. This was a huge improvement.

Thursday was Greg's birthday, so after a trip back into Portland for therapy, we took him out to dinner. Connor's favorite part: The cake of course!

Friday was Tutoring day with Miss Horn (Connor's loves his time with her), followed by family fun night. I made Greg his favorite meal (Chicken Parmesan), and Connor caught up on some Daddy video game time.

Other than a bit of a stiff neck from some of his new Therapy exercises, he's doing really well this round. He's been a little tired, but in great spirits.

Something funny he said to the nurse: During his stay he has to urinate every two hours. The nurse asked him if he went potty, and he said "Yes, I left you a treat in there!" .. nice.

Every time we go in, Connor gets questioned about his age, "Are you sure you are 6?, you are really tall for 6", it happens over and over again during his stay. I guess I'm failing at teaching him grace, because a new PT said "WOW, Are you sure you are 6?" and Connor said "I know.. I know.. everyone says that, I AM 6, but if you want to say I'm 8 that's fine."

The best part of the stay for me: Cuddling up with Connor in the sunny window seat reading Junie B. Jones..... and laughing, I love that boys laugh.

It's just spilled Milk

Unfortunately Connor's counts were too low this week to start treatment. He was at 640, so the doctor is giving him another week to re-cover. In the event they are still too low on Monday, he will most likely receive a lower dose of Chemotherapy.

We enjoyed our "spring break" last weekend. We took a short trip to Long Beach, WA. We enjoyed the beach, and all the fun things Long Beach has to offer.

Unfortunately the Jeep was broken into, but luckily nothing was taken, or broken. I can't believe they didn't

jump at the opportunity to take of with that Weird Al CD, or the bag of beach towels. We did feel a little violated with the thought of some stranger crawling around our Jeep though ewww.

We met a little girl, while we were on Vacation, who has a Neuroblastoma, she is also a patient at Legacy Emanuel, but her 2 hr and 22 minute drive, makes our 45 minute drive to the hospital a piece of cake.

Connor has 2 new cravings this week: Fish and Tatar sauce, and Egg Sandwiches (I like the chocolate cake craving much better).

The most exciting part of our day so far: Working on our April fools day joke for dad, a "Cup of Spilled Strawberry Milk" Made from glue, and red liquid water coloring. Color glue, and set to dry on a wax paper covered cookie sheet. When dry peel off wax paper. You can make it resemble your beverage of choice. Since Strawberry milk has been Connor's beverage of choice lately we thought this would be most "believable".

We are having a hard time:

1. Waiting the next 10 minutes for Greg to come home.

2. Controlling our giggles

3. Keeping sparky from trying to lick it.

Freedom

Connor had his weekly trip to the Oncologist on Monday. His blood count is slowly creeping back up: This week it was 135, still well under the 500 range to go to school, but heading in the right direction. The ANC count will need to be at 1500 in order for him to start his next treatment on 3/29.

A lot of people have asked about what his Chemo schedule looks lik, so I've added his Chemo schedule to the right. It's only a tentative schedule of course, since his treatment is dependent on his ANC being at least 1500. In the event he doesn't meet the 1500 ANC mark, they will push back treatment, or lower the dose he receives.

This was an exciting week for Connor. He got a new bike. The trike was getting a little too small (or should I say his legs were getting a little too long).

Since Connor has trouble with mobility his new bike has given him such a sense of freedom. He asked to ride it almost everyday. We took him to the park and he had a blast. He was even able to tackle the uphill portions. Most importantly he's able to use the handbrake effectively. Connor's favorite parts: The cool blue flames, and the fact he can do tricks. He got so comfortable with it at the park, the next thing I know he said "Hey mom, look at this!" and there he was riding with no hands, his hands folded behind his head. Him: So confident, and proud, Me: Very nervous (but happy)!!!

This whole process has challenged us to be creative. We are constantly coming up with creative solutions so that instead of saying "no you can't do that" , we find alternatives so we can say "Here just use this", or "try it this way". His bike was a good example. We took away the need for Connor to need to balance, and best of all his bike expands to adult and will grow with him.

Another modification we made was for Connor's favorite sunny weather activity: Silly String fights. My son loves the silly string. He has been known to spend all of his allowance on the stuff. We picked up a few (about 7 ) cans, only to find out Connor didn't have the strength in his hands to push down the applicator. Daddy came to the rescue with his spray paint trigger handle. Connor was able to squeeze it with ease.

The weather was so lovely this week. We all got out in the yard and pulled some weeds. It feels so good to get out in the dirt.

Something we are looking forward to: Taking a trip to Long Beach, WA on Friday.

If a Leprachaun gave Connor 3 wishes what would he want:

1. A trip to Disneyworld

2. A trip to Legoland

3. A trip to Hawaii

(I think he likes trips!)

Casting and Reeling

After Connor's chemo stay on February 15th we enjoyed some nice sunshine on the weekend. Connor wanted to go fishing, so we took him to the Trojan Park lake. It was a little windy, unfortunately as fast as he could cast his line out, the wind was pushing it towards us. Needless to say, except for some of those infamous "weed" fish, we didn't catch anything.

Connor was thrilled with casting and reeling in, next time we will just go "Casting and reeling" instead of fishing. On the way home we stopped at our favorite fishing hole "Safeway" and picked up some fish for dinner.

The following weekend we were back to the lake, this time to feed the ducks. They are well fed ducks, and geese.

Unfortunately Connor's blood counts started dipping pretty low, pretty fast this round. On March 3rd I noticed he was developing a blood blister in his mouth, which is a symptom of low platelets that we needed to watch out for. The following day we spent in the hospital getting a platelet and blood transfusion. Connor rolled with it as always.

March 4th was our 10 year anniversary, and unlike 10 years ago (where it rained and rained) the sky was absolutely amazing on that day. The last 10 years have flown by. Although we spent our anniversary at the hospital, all that mattered was that we were together (that we were all together).

Today, Connor's platelet count was up a little bit, but his total ANC took another dive to 30 this week (his lowest count yet). Needless to say no trips to malls, or the Cheese Palace for us.

Connor is adamant that he doesn't get band aids. He can't stand taking them off. Today it took a little longer for him to clot, the nurse said "Are you sure you don't want a band-aid?" Connor's response, "Just let me bleed!"

Something that continues to amaze me:

Random acts of kindness by complete strangers

(a stranger gave Connor a free box to fill up at the Lego store).

What doesn't bother me as much anymore:

The stares from strangers. You can tell through their eyes that they are compassionate.

What I've learned to accept:

That my child has cancer, cancer doesn't have him.

2nd round of maintenance Chemo

Connor was a pro for his second round of Chemo, this time he (and we) knew what to expect.

We arrived on February 15th. We decided to take some pictures of his stay.

He was a real champ, and got up extra early, we left the house around 7 am.

Our first step was to check in for his Audiology appointment. Here he is in the waiting room. He was so excited because he saw an extra special person he knew there.

Here he is waiting some more, in-front the of the audiologist office. He'll have several hearing exam's due the fact Radiation and chemotherapy can cause hearing loss. There were no changes in his hearing so far (Yay great news!!). The audiologist advised us we still shouldn't talk about him down the hall.



At 9 am we arrived at the Oncology office (after a detour to pick up a donut at the hospital cafe). Here he had his port accessed, and had his blood tested prior to being admitted for his stay.






Around 10 am we were checked into the children's floor, while we waited for his chemotherapy drugs to be delivered. We waited.... and waited. Connor played some video games and watched T.V. He knows how to operate everything now. Around 12:30 we got some lunch... and waited some more.

We waited and waited some more....

Monday's are Craft Day, so Connor participated in making a Tie dyed shirt. (I love how they used the bed pads on the tables for absorbency, I thought that was pretty clever!)

We waited and waited some more, and then Mommy couldn't handle it anymore, I had to find out what our hold up was.

So finally at 2:30 PM, he got hooked up to his machine and started his Chemo, and then he went off to play some more.

We ate Dinner from the Cafe (unfortunately Monday night is Mystery Meat, can you believe the menu has been the same since September? ewww)

We said good bye to Daddy, and settled in. Connor did really well, no nausea over overnight. The next day Connor went to "Hospital School" which he really enjoyed.

Tips I've learned: Bring your own creamer, the powdered stuff doesn't do it and Bring your own pillow.

See it all around you...

As Valentines day quickly approaches I wanted to send out my love to everyone, who visits here.

Our family has been overwhelmed by true kindness. Family, Friends, and Strangers have shared their love with our family in many ways. I've been privy to seeing the best of people in these last 6 months. It's like I've been given a special glasses that allow me to see kindness. I see raw emotions, I see caring, I see love.

The love that people have shared with us, has kept us moving forward, and has made us fight. When days are long, and tiring, we are able to stand tall and remember the crowd of people who stand behind us, the people that have our backs, who send their love, and prayers. Thanks for continuing to stand with us.

A man that is worth mentioning: Greg. He's a sentence of his own. He's my rock. There isn't a day that goes by that he doesn't make me laugh. He's one heck of a dad, and a husband, it doesn't get better than him.

Connor: He completes us. Greg and I chose the name Connor because it meant "much wanted". Connor also means "strong willed". Both of which are completely accurate.

Do you remember Valentines when you were in first grade?
Connor was able to participate in Valentines party on Friday. Do you remember painstakingly signing cards for everyone in the class, rushing around to put your cards in the the appropriate "Valentines Mailbox", dumping out your bounty of greatness, admiring each card, who it's from, whether or not there was a special heart, special sugary sweet, or message on your card that made it extra special ? Then, taking your loot home and re-admiring each one again... and again ? It's truly magical to experience Valentines through the eyes of a 6 year old.

Tomorrow: share your love, your hugs, your laughs, your kind words and share stories about those you love. See love all around you.

"You come to love not by finding the perfect person, but by seeing an imperfect person perfectly" -Sam Keen

Connor had a Boys night out with Greg. Connor's choice? Chinese food for dinner. He came home with extra fortune cookies (SCORE!).

Connor was able to visit his class at the end of the day on Friday. Those 1st graders crack me up. One is funny, but a whole classroom of them can be hilarious. They were pumped up to make their Valentines "mailboxes", remember those days?

We were so fortunate to be able to spend the weekend with our friends in Seaside. It was so nice relaxing, and doing fun family activities. Sunday was beautiful and we were able to get out on the beach. Thanks to Nikki's Dad for letting us borrow his metal detector (that was awesome!!), we found a large booty of bottle caps!

We had a delicious meal at Norma's Ocean Diner in Seaside. This was the same Restaurant that we visited with our family in December. Connor fell "IN LOVE" with their chocolate cake dessert. We even picked up a slice the next day on our way out of town with my family. We had the biggest surprise at the end of our lunch: Our whole tab was covered. The waitress wouldn't provide any details, just that the bill had been "taken care of". The kindness of people truly continues to amaze me, and it reminds me to take the opportunity to pay the kindness forward.

Connor's blood counts went down again this week (It was a little unexpected since he is on his last week of his "Break", but the doctor assured us it wasn't uncommon). So here's to hoping his blood counts are back up for his overnight Chemo Stay on Monday.

Connor's working hard on his physical therapy exercises. Yesterday was gorgeous here, and he was able to get out and ride his trike.

How my son makes my heart melt: "Mom you are the prettiest girl I know"
Connor on dating: "Mom, I don't know why everyone is embarrassed to say they have "girlfriends", I have lots of friends that are girls.

Well this hurts...

Connor had his blood drawn last Thursday at the local clinic. He was such a champ, he had to have a regular draw (instead of using his port). I offered him some numbing creme but he chose to go cold turkey. He held out his arm and did his thing. The only thing he requested was "NO BAND AID".

There was a little boy getting his blood drawn, and it was audibly apparent he was not having a pleasant experience. The lab technician apologized to Connor, and Connor told her "It's ok, this hurts you know, that's why kids cry". I'm glad Connor cleared that up for her.

Unfortunately his ANC went down from Monday, he was at 220. Unfortunately Connor needs to stay home from School for counts below 500. Our friends made us breakfast on Saturday which was really nice (and delicious). Connor was pretty tired and took a long nap.

On Monday his counts crept back up to 340, but he's still be pretty sluggish (this morning he didn't wake up until 11:30). He has a new found food fascination: Egg Flower Soup (I definitely liked the chocolate cake craving much better, but each their own).

Chemo Pal Nick was on Vacation this week (we missed him during our appointment).

We made our weekly trip to the library this week. This weeks fascination: Tigers

He read a book to me at the library. I love that he is AWARE that he can read. "Hey Mom I can read this book", "Hey mom did you read that sign you can save 50%!!", "Hey mom we need those they are buy 1 get 1 Free!!", "My personal favorite: Mom we need the perfect brownie pan, you can bake the perfect treats every time !!".

He's been working hard on his home exercises, even though he's been pretty tired. We hope he's on the upswing.

Connor's on a break from Chemo drugs for 4 weeks. His next Cycle will start on:
2/15/10 Starting with an Overnight Stay.
He will then have a Dose of Vincristine on 2/22 and another on 3/1.
The following 4 weeks will just be blood draws, no drugs.
Please pray for good counts so that he can stay on schedule.

For our local friends: It's still a while off but we are planning a garage sale in March. As you are spring cleaning please think of us, we'll be happy to accept your used items for our sale.

Something that surprises me: Sparky is sleeping in his castle bed (what kind of dog could turn that down?)

So Sleepy

As the doctor predicted, this week has been a little rough on Connor's body. This was the first week that his Hemoglobin counts were down, causing him to be sleepy and get tired very quickly. He's been extra unsteady and needs assistance getting around this house. His ANC (White blood cells) were fairly low in the 600 range, so we were advised to steer clear of crowded places (Malls, movies theaters, etc.) and places like Chuck E. Cheese (One of Connor's favorite germ laden places).

Connor's been conserving his energy, he really hasn't been in the mood to do much of anything. He's been having some general aches and pains: Tummy, back, and Cramps in his calves and thighs.

Even though he's been achy, he was anxious to start a project with his dad. Connor decided he wanted to build our dog "Sparky" a wooden dog bed. He was inspired by the book he received at his classroom book exchange. It's a story about a little boy who raises a puppy. Connor decided that he wanted Sparky to have a bed like the dog in the book (With a few modifications: A "White Castle Bed", with flaming dragons.).

He helped Daddy assemble and paint it, and now it's just waiting for some finishing touches. He also wants sparky to have his own "Puppy" to take care of (I don't think anyone consulted Sparky about that).

We're having a consultation with a local physical therapy center today, I'm really hoping it works out. The less we have to travel to Portland the better (and easier on Connor).

Monday was the last dose of Vincristine for this cycle, now his body will have 4 weeks off from drugs until he starts the next cycle.

I'm going to do a second post today that explains what his "Maintenance" phase of chemo looks like, It's very confusing, but I know a lot of people have asked about it.

We're trying really hard to get into a routine but it's proving to be challenging. We're doing a lot of juggling: Hospital Visits, Physical Therapy, Speech, Ophthalmology, squeezing in some downtime, School and the everyday stuff (Is it really Tax time?). Trying to prioritize can get a bit tricky, and many things are dependent on blood counts, and how the little dude is feeling.

On the eye front: Connor's eye seems to be improving, he's able to keep it open more during the day (Yay!).

The Vincristine is definitely challenging. We start to notice side effects about week after it's administered (some of the most prevalent: Muscle weakness effecting fine motor, and gross motor skills). While Connor was on his break from Vincristine we did start to notice some improvement towards the end of the break, but since starting a new "Cycle" we see some of the effects again. It's such a roller coaster.

Good news it really doesn't seem to phase Connor. He just rolls with it.

And so we will we. We will have to be a little more patient, a little more flexible, roll with the punches, and just go with the flow (It's so worth it).

Something I've been taking for granted: The view out my window, when the sun rises over Mt. Adams, it's just amazing.

The house is too quiet

Wow a lot has been happening around the Solomon household.

Connor only had one small bout of nausea after his overnight chemo stay last week. He's been a real champ. The Oncologist told us we can expect his blood counts to start going back down this week. The Maintenance Chemo Schedule is a bit confusing it will take some time for us to get used to it.

We've been enjoying our time with our family. We were real fortunate and they were able to spend several weeks with us. It's been nice to have other people around to keep our minds off "The Cancer" for a little bit.

Connor decided on Thursday that he wanted to have a "Boys night out", so he decided he wanted to take Daddy and Grandpa to the movies to see a "Boy Movie": Alvin and the Chipmunks (Grandpa was SOOO excited to see that!). The "Girls" went out to do water aerobics. Unfortunately the class times changed (My planning went awry again) so we came home and watched a movie.

On Sunday we went to Lincoln City with our family. Our plan was to go crabbing but unfortunately by the time we got there the tide was out (Missy's planning strikes again),It would have been great for clamming though!. Although he was sorely disappointed about not being able to go crabbing, Connor went searching for shells and rocks with Daddy and found a few rocks to try in his rock tumbler. It was nice that we were able to visit the Ocean so much during our families stay, the salty air always reminds me of my hometown, and special times growing up.

Our Friends were so kind to deliver VooDoo Donuts (thanks Nikki and Bryan) the family was so excited about that.

We finally dismantled Christmas. Connor was really upset, he wanted to keep the tree up "Forever" (me too!!). We played lots of card games and my family became a little addicted to "The Price is Right" on WII.

My family packed up today and flew back home. Connor helped with their luggage at the airport. Of course it's always bittersweet when my family comes to visit. It's so comforting when they are here, but so very sad when they need to leave.

Having my family here was like being wrapped inside a big warm blanket, I felt safer, and stronger. My family grounds me. My sister with her great laugh, and smile. My mom with her big strong hugs that hold me together when I feel like I could just fall apart in her arms, and my dad who makes me laugh down to my soul (and always keeps us well fed). When they are gone I miss their quirks, our little inside jokes, and the extra noise in the house, it's all too quiet.

Although Connor would never verbally admit he was feeling sad, he is. We talked about how quiet the house was, and he gave me an extra long goodnight hug.

The best part of today: Having people in your life that you love so much.

Chemo Maintenance-1st day

Connor actually woke up excited to go to the Hospital yesterday. We knew it was going to be a busy day but didn't know exactly what to expect for our first overnight Chemo stay. Here is the run down:

9:oo am Connor had a bowl of cereal.

9:30am We left the house (it was pouring rain) Connor was still hungry for more breakfast (steroid frenzy) so we picked him up some breakfast to go.

10:15 We arrived at the clinic for our 10:30 apt. It was packed. Connor's weight went up about 3 lbs. since our last visit. We read magazines, played Rock-paper-scissors, and crazy Eights.
10:45 Connor got his port accessed, and his blood drawn.

11:45 We met one of the Oncologists, He went over Connor's blood results (ANC was over 6,000, Excellent!). The Doctor talked to us about Connor's MRI results. Although there is no evidence of recurrence (Excellent News), the damage to his Cerebellum from the radiation can be observed (this was to be expected), his Cerebellum is smaller. The damage that has been done to his brain (from the treatments) has also caused Ataxia. He has been experiencing increased: Unsteadiness, unsteady gait, uncoordinated eye movements, and some clumsy speech. We're hoping to see some improvement from strengthening his core muscles, and enrolling him in weekly Physical, Occupational, Speech and Swim Therapy.

12:45 After a thorough exam we headed over to the Children's Floor to check in for our overnight stay. Connor ate some lunch (Steroid frenzy again).
1:00 We played some games, went to the "Starlight Lounge" playroom
2:30 Connor started his Chemo Therapy. A Dose of Vincristine, Hydration, and Zophran (Anti Nausea Medicine).
4:00 Chemo Pal Nick came to play. He went with Connor to the Starlight Lounge to paint a piggy bank. We all played UNO attack.
5:00 Dinner. These steroids will make a little man do crazy things. He ate the "Mystery Meat" and Mashed potatoes. Amazing.
6:00pm More Chemo- 6 hours of Cisplatin. A bedtime Movie. lots of peeing.
9:45pm: Connor finally fell asleep. lots of peeing.
12 am -5am Hydration- waking up to Pee every 2 hours.
5 am 1 Dose of Nausea. Benadryl made him feel better.
5 am- Current: Hydration/Peeing every 2 hours/Breakfast/and now he's off to the Starlight lounge to play video games with Daddy.

We'll be here until 6 pm tonight, just receiving fluids. We have a follow up with his Radiologist at 1pm while we are here, and hopefully some Therapy squeezed in somewhere.

Being here definitely brings back memories of our very first stay (especially when I can see the PICU from our Window) but it also is a reminder of how far Connor has come. Even Connor acknowledged his progress when breakfast was delivered (The meals don't change around here either lol). "Mom, do you remember when we were here before and I couldn't feed myself the cereal?", Yes I do. I remember not knowing if he would be able to walk, dress himself and do a number of other things that I may have taken for granted prior to this. But he can.

Something special about yesterday: The strength my son gives me. How he continually amazes me. How brave he is.

Something funny Connor said yesterday: The nurse asked Connor if his bandages make him break out. "No", he said "I won't break out, I have to stay overnight".

We took the family to OMSI on Saturday. Connor had a blast. He enjoyed all of the exhibits including the new T-Rex exhibit. He told grandpa, "I'm an explorer, I'm going to find dinosaur bones one day".

After OMSI we took the family to Voodoo donuts but the line was a little too long (and slow moving) so we will try again another time.

Connor is an eating machine since he started his steroid. He has a new found fascination with Crab and asks every morning if we can go crabbing.

Here is a photo from the Chocolate cake fascination. We are happy he's starting to put on a little more weight before starting Chemo.

The snowman that Grandpa made finally melted on Saturday, he hung on for a long time.

Last night we had a nice evening with friends and family, Cioppino, and a fun game of apples to apples.

We will be checking in for Connor's Chemo this morning. He will have 6 hours of Chemo followed by 24 hours of hydration. These rounds of chemo can make him nauseous so we will need to keep him on his anti-nausea medicine.

Happy New Year

Happy New Year! We're definitely ready for it!


We enjoyed a nice evening of appetizers, and a cracked crab dinner. I think Connor ate a whole crab all by himself.

Connor almost made it, he fell asleep at 9:30.

Wishing you the best of health, much happiness, lots of laughs and much kindness in 2010.

A quick update

Connor's MRI scans showed NO tumor recurrence (Yay!!). His blood counts were fabulous (Over 4,000, the best yet!). His hearing test showed no hearing loss.

He had some swelling (most likely a side effect from the radiation), and he has been taking steroids to help with the edema. They are definitely helping and have also increased his appetite. Connor has gained 2 pounds since last week (mostly from Chocolate cake I'm sure lol).

He's all set to start his maintenance phase of Chemo on the 4th. He will have Chemo for 6 hours followed by 24 hours of hydration.

He's a tough guy for sure. We send our love to everyone and hope you have a fabulous New Years celebration.

Cotton Candy for me please

Connor had his MRI this morning at 6:15. He was a real trooper. He was able to choose a special "Smell" for his anaesthesia gas. He chose cotton candy (too bad they didn't offer chocolate cake).

He woke up happy, and was extra hungry for: Chocolate Cake of course.

We will be getting the MRI results after Connor's hearing test, tomorrow afternoon.

We had a big surprise this afternoon.... snow. Connor enjoyed it so much, he has been waiting for snow all month.

Thanks for all the prayers and well wishes for a clean scan.

A nice thing: Some of the nurses that helped Connor when he was in Radiation Treatment, were there for his MRI. It was like seeing old friends.

The best part of my day: Connor enjoying the snow.
The best part of Connor's day: Chocolate Cake

I hope everyone had a lovely Christmas. Connor decided to leave Santa Chocolate Milk this year because he thought "Santa might be tired of regular white milk". He was so excited to see that Santa ate his cookies and drank his chocolate milk.

We hope we didn't disturb the neighbors too much while we blasted guitar hero all day.

On Saturday we took the family for an overnight stay in Seaside. Connor loved walking on the beach, playing arcade games, eating clam chowder, feeding the seals, swimming in the pool, and eating chocolate cake. Lots of fun was had by all.

Tomorrow is a big day for us. Connor is getting a full head and spine MRI tomorrow morning at 6:15. Please pray for clean results.

Best part of the day: My son's new found love for Chocolate cake. How does he manage to get it on his forehead?

What do you see through your glasses?

Our week has been so full. We have been enjoying having our family close with us during this time of year. Connor's counts have been up and are the highest yet, his total blood count was over 2,000 on his blood draw this week.

Connor has been enjoying (and probably wearing out) his family. He went bowling, to the movies and has been eating lots of yummy baked goodies. I wanted to send a heartfelt thanks to all the people that have thought of our family during the holidays. The kindness of all of the anonymous gifts has been so overwhelming. The cards, the gift baskets, and the homemade gifts were all so lovely.

I hope you find your heart full on this Christmas eve. I've been given a new pair of glasses this year that allows me to see the things that matter most. I see things that I have never seen before and I see things clearly that before were blurry. I can actually see the love that family, friends, and strangers share with my son. I see small things that don't matter so much, and small things that mean so very much. I hug a little more, I watch a little more, I experience life a little more. I cry a lot more, but I also love a lot more. Although I am more scared than I have ever been in my life, my heart is filled to the brim with love.

Thank you to everyone who has sent Connor a gift, a card, a thought or a prayer. Your well wishes, love and prayers keep our hope strong.

I wish you and all of yours a very Merry Christmas.

The best part of today: Loving life, Living life, hearing Connor laugh, seeing him smile and feeling his hugs.

Something funny he said today: My mom bought a cake from the bakery and it got a little smashed up in the box, she was trying to smooth out the frosting and Connor said, "Grandma you don't need to do that, just take it back and have them re-frost it."

Time flies when you are having fun

It has been a fun and exciting week for Connor. Friday was very busy.

Grandma Debbie, Grandpa Roger and Auntie Mallory arrived early Friday morning, Connor has been counting down the days for them to visit.



Connor's class had a lovely Christmas celebration Friday morning. There was a relay race, book exchange and some fun Christmas dancing and singing. It was so great seeing the Holiday joy on those kids faces.

After Connor's Christmas party we took him to see the Neurological Opthamologist. She was very pleased that his optic nerves looked great, and his vision was great. She confirmed our suspicions that the ptosis he's experiencing is a side effect of his Chemo drug Vincristine. She also told us she has seen quite a few kids with the same side effect from Chemo, and the condition is generally temporary and improves after they stop taking the drug. We are going to work at getting Connor a pair of glasses with a ptosis crutch (This is a photo of what a ptosis crutch looks like). He will wear the glasses a couple times a day to lift his eye lid. This will keep the eye active and prevent it from getting weak. He was a champ at getting his eyes dilated.




Connor has been having a blast playing with grandma, grandpa and auntie. It definitely feels a lot more like Christmas when you are surrounded by family.





Saturday he was pretty exhausted and went to bed pretty early, it was such a busy and fun week for him.





Our mystery gifts continue. Each one is unique, and so very thoughtful. One of the packages this weekend included a harmonica. Connor must have played that for about an hour straight. It's nice when





We also have been receiving a different piece of a nativity set every night. It gets dropped off on the front porch every night. Whoever is leaving the stealth presents has been pretty elusive. Our dog Sparky (or barky and he's warmly regarded), doesn't even bark or notice. The set is beautiful and it's a nice reminder of the real reason for Christmas.





Please rest assured if I don't write as much for the next few days, everything is well. I'm just soaking in all the love from the family.








One of Connor's favorite activities to play with Grandpa: Paper Airplanes

It's all pretty amazing.

We continue to receive mystery gifts. I know I have said it before, but it truly amazes me. I don't really have the right words to describe how overwhelming the generosity has been.

Connor was able to enjoy a nice afternoon at School on Tuesday and Wednesday.

On Tuesday Connor was excited about participating in P.E, although he was concerned about not being able to run. I re-assured him that he just needed to do his best, even if he wasn't able to run.

The last time he went to P.E he was still in his wheelchair, yesterday he participated in a relay race. It's truly amazing to me. Although some folks may just see a kid who has challenges, I see a little boy who has accomplished so much, and continues to accomplish so much everyday.

Post surgery I had no idea if my little boy would ever walk again. On Tuesday he did a super fast walk (in place of jogging), Galloped (by holding onto my hands), Skated on Paper Plates, and used a scooter board (with some support). I was prepared for him to be upset, or frustrated, or angry because he "couldn't do the same stuff" as before; instead I had a little boy who was excited about his accomplishments. "Wasn't that great?" he asked me, "Did you see all that stuff I did?", "Yes I did" I told him, "I loved how you did your best."

I was also impressed by the teamwork of Connor's class. There were no long faces because they "lost" the relay, instead I heard lots of "Good Job Connor!" and "You did it!". Again, Amazing.

Well needless to say after a long Tuesday, Connor woke up sore this morning. His little legs had a big work out.

Today Connor went to library, did math, and films. The class was so energized by their teacher. Their personal favorite had to be "Build a Man" (Hangman). What a super creative way for kids to learn about letters and spelling.

Miss Horn is like a Rock Star to those kids. They have such admiration for her. She's like a perfect sweet and sour sauce, Just enough sweet to balance the sour.

I am continually impressed by the Teacher's and staff at Connor's school. They continue to do more with less, they are creative, and fun. Yet firm and have high expectations.

Visiting that classroom always renews my hope for the future. Not just my son's future but our future as a country. There is so much good to still be found in young children. So many great qualities to encourage and celebrate.

If these kids were in a dark room they would truly shine.

Party with his Chemo Pal

Connor had a great party on Sunday with his Chemo pal Nick. Connor was able to meet some of the wonderful retired Trailblazers who volunteered their time to make a special day for approximately 300 area kids.

Connor's counts went down today, but they weren't low enough to prevent him from going to School this week. Hopefully he can participate in some of the fun activities this week.

Connor donated some of his DVD players to Legacy Today. The Social worker said they already have a candidate that is ready to start treatment. Although they can't give us their name, we have included our contact information and hope to be able to put a photo on Connor's Fan site for each recipient. Thank you to everyone that has helped/and continues to help with his project.

Friends, Food and no Freezing rain

We were expecting freezing rain and possibly snow today, so we decided to take a rain check on driving to Portland to see the play. Unfortunately the freezing rain never came.

In lieu of missing the play we had a wonderful time with our friends tonight. Always good times, and good laughs.

Connor received another fun surprise gift: a cookie cutter set, with sprinkles and a cool tie dyed apron. Mommy and Daddy got some mugs with hot cocoa mix. These gifts are so kind and thoughtful. We will be enjoying some quiet time this evening with our feet up !

Tomorrow Connor has his Christmas Party with Chemo Pal Nick he's really looking forward to it.

Best Part of today: Greg FINALLY won his first game of Catan

Mail time

Christmas is forever, not for just one day, for loving, sharing, giving are not to put away,
like bells and lights and tinsel, in some box put upon a shelf. The good you do for others is good you do yourself... - Norman Wesley Brooks

Connor has received his third anonymous gift this week (Thank you for the awesome gifts anonymous sender(s)!). Greg of course has been racking his brain trying to figure out who they're from, but it is clear they are from "someone who cares".

I also wanted to send out a big Hug and Thank you to our friend Stella. In lieu of birthday gifts her generous family collected donations on behalf of Connor's DVD player project, he was able to purchase two more DVD's players. A big thank you to Stella's friends and family!

Another big thank you to everyone who has purchased his cards and made donations. Those children and families will be so appreciative.

Connor has a big weekend planned. On Saturday we are attending a live theater performance of a Christmas Carol, and on Sunday Connor is going to a Christmas Party with Chemo Pal Nick (both sponsored by CCA). Both will be great opportunities for him to meet other children affected by Cancer.

Although this tragedy has affected us this year, my heart feels so full. I feel closer to family, friends, strangers, just life in general. So many things touch my heart every day. I appreciate so many more things.

We received some unsettling news from Greg's work, there will be some layoffs. It's not clear how many,when, or who at this time. Greg's co-workers have always been so kind to us, they were some of the 1st to welcome us to this community. He works with many kind and compassionate people. We understand that times are hard for many businesses, and people right now. We hope and pray that these times will get better, and we can offer what we can for those in need.

Now that I'm a mom I realize how important it is to create new traditions as well as honor some of the old during this holiday Season. For this month I've marked some activities that I would like our family to share during the season.

What about you? What are some of your traditions?

Today's Tradition: Making an Ornament
Something funny Connor said: "Mom I LOVE playing Star Wars with you, It's sooooo much easier to win, than when I play against Dad".
The best part of my day: Looking at old photos with Connor. We came across a photo of my wedding dress during my fitting and he said "Mom, you looked so beautiful in that dress, you should wear that more often"

He lost another ....

I can't believe I forgot to report Connor lost his tooth on Sunday! All is well the tooth fairy came and picked it up.

Connor and I went Christmas Shopping today for Greg. The stuff he picks out for Greg is always so entertaining.

Connor had a nice tutoring session with Miss Horn today, after that we met some friends for Dinner. Connor scored some new vending machine tattoos.

On our way home Connor asked if he could stop at "that store that is open 7 days a week! to get a Popsicle". After a game of 20 questions we finally figured out he meant Rose Valley Market. He scored a crunch ice cream bar and I had a fudge bar. I know it's pretty crazy to be eating a Popsicle when it's 25 degrees outside.

Something Funny Connor Said today:
On the way home Connor said "Mommy I want you to be with me forever"
"Ahhh that's so sweet Connor" I said
"Can I have a bite of your ice cream now?" He said.

The best part of the day:
Shopping with my little dude.
For Connor: Having teacher come over

Counts are still up

Connor had a nice weekend. It was great that his counts were up (we were able to get out a little and do some shopping).

He had an appointment for a blood draw this afternoon. It was strange going back to the hospital after being off for a whole week. Connor was a little nervous about having his port accessed again, but we had some pleasant distraction from Chemo Pal Nick.

Chemo Pal Nick stocked up on some new games and we enjoyed a few rounds of crazy 8's and UNO while waiting for the doctor and the lab results. I can't express enough how wonderful the Chemo Pal program is. CCA (Children's Cancer Association) really does a lot of great things for Children and Families affected by Cancer.

Connor's counts were up again this week and so was his weight (Hooray!!), although he would normally be able to go to School this week, some students in his class have recently received the H1N1 flu mist which will prevent him from attending School for 5 days. Miss Horn is keeping us posted, and although he is disappointed about not seeing his friends, we understand the precaution and appreciate the parents in his class notifying his teacher.

Connor is scheduled for a routine MRI for his head and spine on 12/29 please pray and send good thoughts his way that the scans are clear. On 12/30 he will have another hearing test. Some of the chemo causes hearing loss, so they will be establishing a base line.

Connor's 1st round of Maintenance Chemo will be on January 4th. He will be admitted to the hospital for an overnight stay. He will receive 6 hours of the Chemo drug Cisplatin followed by 24 hours of fluid.

The best thing about today: Connor feeling good
Something exciting: Greg found a shortcut

Brrrr it was cold today ..

It was a busy day for Connor yesterday. He had another great day at School. After School we met with his local doctor to touch bases, It's was our first visit since his diagnosis, so we had a lot to catch up on. After his appointment he had a tutoring session with Miss Horn. He went to bed pretty exhausted.

By the feel of things it's almost as if Winter has arrived early, I think it's time to unearth the snow gear.

Connor was able to visit his Dad at work for lunch today. That has always been a special treat for Connor since he was little. He loves getting a special treat from the vending machine at work. Today was extra special, Greg's friend at work gave him a super cool Clone trooper helmet set. After I was able to remove it from the packaging, He spent about 30 minutes shooting foam darts at his action figures (at least it wasn't at me lol).

I want to thank everyone who have purchased Connor's cards. Through your generous donations he has enough to purchase 2 DVD players and has a great start towards a third. As the Social workers have a child that meet the criteria they will be able to present the DVD players to them, and hopefully make that families daily trip to radiation a little easier.

We will be retiring some of Connor's cards at the end of the month, and will be replacing them with new designs soon.

Many people have been so generous to our family, and again I wanted to extend our Thanks.
As Christmas approaches many people have asked what they can send Connor and our family this year:

For Connor:
Books (Please feel free to write an short message on the inside cover)
Gift Cards to Blockbuster (He loves to rent games from there)
Gift Cards to Toys R US (He really enjoys taking a day trip there)

For Us:
A Christmas Ornament from your family
Gift Cards to local stores (Safeway or Wal mart) to help with our misc. expenses

Connor has another loose tooth, I expect it to fall out (or be pulled out lol) within the next week.

I hope everyone has a lovely weekend, and takes some time out to enjoy the sights of the season.

"That was a great day mom!!!"

Connor slept great last night. We took a quick trip to Fred Meyer to pick up Connor's prescriptions and then we were off to School.

We brought Connor's walker I wasn't really sure exactly what he would need for support. When we got there the class was working on workbooks and reading. Connor opened his workbook and started working on a worksheet, then he joined his group for reading.

After reading he went to recess. He did a great job navigating the playground without his walker. He was so excited to see his friends, he showed me around the playground. Lots of kids came up to him, and told him they were excited to see him back. It was nice watching him have "normal" 6 year old interactions with his peers (Chatting about Christmas, and Thanksgiving, and family vacations, my dad this my mom that). I know he has been missing other kids.

After recess he went to the library. The Librarian read a darling book called "Snowmen at Christmas" (lovely illustrations). Connor picked out a Military Plane book, and the Librarian was very kind to lend him some extra books to read at home, she always picks great books, he loves Library time.

Connor decided he wanted to stay through lunch and second recess. By second recess he left me in the dust and was off with his friends. He played 4 square and caught up on a lot of much needed socializing.

It was very aparent how well Connor's teacher has educated her class on Connor's disease. They all treated him like "normal". They made him feel very welcomed, but not overwhelmed. At lunch and recess he got several looks from other kids that weren't in his class, but he took it all in stride. I asked him if he was concerned about that, and he told me "No mom it's ok, they probably just don't know that I'm alright".

I could tell he did his best today, and that he was going to be just fine.

At recess a little girl came up to me and said "I'm very happy that Connor is back, it's so great that he can walk around now and doesn't need a wheelchair".
I agreed with her and told her how hard Connor was working to get his strength back.
"It's sad he lost his hair", she said "I hope it comes back"
"Oh it should," I told her, "but honestly he's happy he doesn't have to brush it"
She laughed and then said, "but the best thing is.... that he's O.K"
And then I had to hide my face to wipe the tears away, because she got it.
A 6 year old nailed it on the head .. the BEST thing is that he's O.K

On the way out of the doors Connor said, "That was a GREAT day mom", and it was.

At home we cuddled up on the couch with a big blanket, a bowl of popcorn and a movie, he was exhausted, but sooo happy.

The best part of my day: School, it was a huge boost to Connor's Self Confidence. It relieved a lot of anxiety that he had about things he wasn't sure if he would be able to do or not.

Something I was thankful for: Miss Horn and all the other Teacher's and Staff at Connor's School, and the kids who just "get it".

We're done with radiation

We had a lovely 4 day weekend. We enjoyed the normal things of the Season. Roasting our Turkey, putting up some Christmas decorations, and driving around town looking at all the lights that are already up while listening to Christmas music on the radio. This year we had a virtual Thanksgiving with some of our family in CA using an online service called Skype. Connor thought that was so exciting.

We said our goodbyes and thank-yous to the wonderful staff at the Radiation department. Although we will miss them all we won't be missing the daily drive to the hospital.

As we waited for Connor to wake up on his last day of radiation treatment Greg and I felt very blessed. There were so many wonderful people from the Radiation & Anaesthesia team that have touched his life (and ours). They have taken such good care of him these last 6 weeks.

After Connor woke up (which went very well the last day) we met with Chemo Pal Nick. Connor always looks forward to his time with him. We played more Go Fish and Old Maid.

Connor's blood counts were up today (yay!!!). His total count was up to 958. Looks like we'll be able to head to school this week!

Connor was de-accessed, and we picked up a Video Game rental to Celebrate. Connor also requested a "Party" so we had cupcakes and he blew out 6 candles (to represent) the last 6 weeks of treatment.

For December he only needs to go in once a week to have his blood tested. We are looking forward to this much needed break.

The Best part of the day: Completing Treatment, Celebrating Connor's accomplishment, and moving forward with life.