Our week has been so full. We have been enjoying having our family close with us during this time of year. Connor's counts have been up and are the highest yet, his total blood count was over 2,000 on his blood draw this week.
Connor has been enjoying (and probably wearing out) his family. He went bowling, to the movies and has been eating lots of yummy baked goodies. I wanted to send a heartfelt thanks to all the people that have thought of our family during the holidays. The kindness of all of the anonymous gifts has been so overwhelming. The cards, the gift baskets, and the homemade gifts were all so lovely.
I hope you find your heart full on this Christmas eve. I've been given a new pair of glasses this year that allows me to see the things that matter most. I see things that I have never seen before and I see things clearly that before were blurry. I can actually see the love that family, friends, and strangers share with my son. I see small things that don't matter so much, and small things that mean so very much. I hug a little more, I watch a little more, I experience life a little more. I cry a lot more, but I also love a lot more. Although I am more scared than I have ever been in my life, my heart is filled to the brim with love.
Thank you to everyone who has sent Connor a gift, a card, a thought or a prayer. Your well wishes, love and prayers keep our hope strong.
I wish you and all of yours a very Merry Christmas.
The best part of today: Loving life, Living life, hearing Connor laugh, seeing him smile and feeling his hugs.
Something funny he said today: My mom bought a cake from the bakery and it got a little smashed up in the box, she was trying to smooth out the frosting and Connor said, "Grandma you don't need to do that, just take it back and have them re-frost it."
Thursday, December 24, 2009
Sunday, December 20, 2009
Time flies when you are having fun
It has been a fun and exciting week for Connor. Friday was very busy.
Grandma Debbie, Grandpa Roger and Auntie Mallory arrived early Friday morning, Connor has been counting down the days for them to visit.
Connor's class had a lovely Christmas celebration Friday morning. There was a relay race, book exchange and some fun Christmas dancing and singing. It was so great seeing the Holiday joy on those kids faces.
great, and his vision was great. She confirmed our suspicions that the ptosis he's experiencing is a side effect of his Chemo drug Vincristine. She also told us she has seen quite a few kids with the same side effect from Chemo, and the condition is generally temporary and improves after they stop taking the drug. We are going to work at getting Connor a pair of glasses with a ptosis crutch (This is a photo of what a ptosis crutch looks like). He will wear the glasses a couple times a day to lift his eye lid. This will keep the eye active and prevent it from getting weak. He was a champ at getting his eyes dilated.
Connor has been having a blast playing with grandma, grandpa and auntie. It definitely feels a lot more like Christmas when you are surrounded by family.
Saturday he was pretty exhausted and went to bed pretty early, it was such a busy and fun week for him.
Our mystery gifts continue. Each one is unique, and so very thoughtful. One of the packages this weekend included a harmonica. Connor must have played that for about an hour straight. It's nice when
We also have been receiving a different piece of a nativity set every night. It gets dropped off on the front porch every night. Whoever is leaving the stealth presents has been pretty elusive. Our dog Sparky (or barky and he's warmly regarded), doesn't even bark or notice. The set is beautiful and it's a nice reminder of the real reason for Christmas.
Please rest assured if I don't write as much for the next few days, everything is well. I'm just soaking in all the love from the family.
One of Connor's favorite activities to play with Grandpa: Paper Airplanes
Grandma Debbie, Grandpa Roger and Auntie Mallory arrived early Friday morning, Connor has been counting down the days for them to visit.
Connor's class had a lovely Christmas celebration Friday morning. There was a relay race, book exchange and some fun Christmas dancing and singing. It was so great seeing the Holiday joy on those kids faces.
After Connor's Christmas party we took him to see the Neurological Opthamologist. She was very pleased that his optic nerves looked
great, and his vision was great. She confirmed our suspicions that the ptosis he's experiencing is a side effect of his Chemo drug Vincristine. She also told us she has seen quite a few kids with the same side effect from Chemo, and the condition is generally temporary and improves after they stop taking the drug. We are going to work at getting Connor a pair of glasses with a ptosis crutch (This is a photo of what a ptosis crutch looks like). He will wear the glasses a couple times a day to lift his eye lid. This will keep the eye active and prevent it from getting weak. He was a champ at getting his eyes dilated.Connor has been having a blast playing with grandma, grandpa and auntie. It definitely feels a lot more like Christmas when you are surrounded by family.
Saturday he was pretty exhausted and went to bed pretty early, it was such a busy and fun week for him.
Our mystery gifts continue. Each one is unique, and so very thoughtful. One of the packages this weekend included a harmonica. Connor must have played that for about an hour straight. It's nice when
We also have been receiving a different piece of a nativity set every night. It gets dropped off on the front porch every night. Whoever is leaving the stealth presents has been pretty elusive. Our dog Sparky (or barky and he's warmly regarded), doesn't even bark or notice. The set is beautiful and it's a nice reminder of the real reason for Christmas.
Please rest assured if I don't write as much for the next few days, everything is well. I'm just soaking in all the love from the family.
One of Connor's favorite activities to play with Grandpa: Paper Airplanes
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