Saturday, December 12, 2009

Friends, Food and no Freezing rain

We were expecting freezing rain and possibly snow today, so we decided to take a rain check on driving to Portland to see the play. Unfortunately the freezing rain never came.

In lieu of missing the play we had a wonderful time with our friends tonight. Always good times, and good laughs.

Connor received another fun surprise gift: a cookie cutter set, with sprinkles and a cool tie dyed apron. Mommy and Daddy got some mugs with hot cocoa mix. These gifts are so kind and thoughtful. We will be enjoying some quiet time this evening with our feet up !

Tomorrow Connor has his Christmas Party with Chemo Pal Nick he's really looking forward to it.

Best Part of today: Greg FINALLY won his first game of Catan

Thursday, December 10, 2009

Mail time

Christmas is forever, not for just one day, for loving, sharing, giving are not to put away,
like bells and lights and tinsel, in some box put upon a shelf. The good you do for others is good you do yourself... - Norman Wesley Brooks

Connor has received his third anonymous gift this week (Thank you for the awesome gifts anonymous sender(s)!). Greg of course has been racking his brain trying to figure out who they're from, but it is clear they are from "someone who cares".

I also wanted to send out a big Hug and Thank you to our friend Stella. In lieu of birthday gifts her generous family collected donations on behalf of Connor's DVD player project, he was able to purchase two more DVD's players. A big thank you to Stella's friends and family!

Another big thank you to everyone who has purchased his cards and made donations. Those children and families will be so appreciative.

Connor has a big weekend planned. On Saturday we are attending a live theater performance of a Christmas Carol, and on Sunday Connor is going to a Christmas Party with Chemo Pal Nick (both sponsored by CCA). Both will be great opportunities for him to meet other children affected by Cancer.

Although this tragedy has affected us this year, my heart feels so full. I feel closer to family, friends, strangers, just life in general. So many things touch my heart every day. I appreciate so many more things.

We received some unsettling news from Greg's work, there will be some layoffs. It's not clear how many,when, or who at this time. Greg's co-workers have always been so kind to us, they were some of the 1st to welcome us to this community. He works with many kind and compassionate people. We understand that times are hard for many businesses, and people right now. We hope and pray that these times will get better, and we can offer what we can for those in need.

Now that I'm a mom I realize how important it is to create new traditions as well as honor some of the old during this holiday Season. For this month I've marked some activities that I would like our family to share during the season.

What about you? What are some of your traditions?

Today's Tradition: Making an Ornament
Something funny Connor said: "Mom I LOVE playing Star Wars with you, It's sooooo much easier to win, than when I play against Dad".
The best part of my day: Looking at old photos with Connor. We came across a photo of my wedding dress during my fitting and he said "Mom, you looked so beautiful in that dress, you should wear that more often"

Tuesday, December 8, 2009

He lost another ....

I can't believe I forgot to report Connor lost his tooth on Sunday! All is well the tooth fairy came and picked it up.

Connor and I went Christmas Shopping today for Greg. The stuff he picks out for Greg is always so entertaining.

Connor had a nice tutoring session with Miss Horn today, after that we met some friends for Dinner. Connor scored some new vending machine tattoos.

On our way home Connor asked if he could stop at "that store that is open 7 days a week! to get a Popsicle". After a game of 20 questions we finally figured out he meant Rose Valley Market. He scored a crunch ice cream bar and I had a fudge bar. I know it's pretty crazy to be eating a Popsicle when it's 25 degrees outside.

Something Funny Connor Said today:
On the way home Connor said "Mommy I want you to be with me forever"
"Ahhh that's so sweet Connor" I said
"Can I have a bite of your ice cream now?" He said.

The best part of the day:
Shopping with my little dude.
For Connor: Having teacher come over

Monday, December 7, 2009

Counts are still up

Connor had a nice weekend. It was great that his counts were up (we were able to get out a little and do some shopping).

He had an appointment for a blood draw this afternoon. It was strange going back to the hospital after being off for a whole week. Connor was a little nervous about having his port accessed again, but we had some pleasant distraction from Chemo Pal Nick.

Chemo Pal Nick stocked up on some new games and we enjoyed a few rounds of crazy 8's and UNO while waiting for the doctor and the lab results. I can't express enough how wonderful the Chemo Pal program is. CCA (Children's Cancer Association) really does a lot of great things for Children and Families affected by Cancer.

Connor's counts were up again this week and so was his weight (Hooray!!), although he would normally be able to go to School this week, some students in his class have recently received the H1N1 flu mist which will prevent him from attending School for 5 days. Miss Horn is keeping us posted, and although he is disappointed about not seeing his friends, we understand the precaution and appreciate the parents in his class notifying his teacher.

Connor is scheduled for a routine MRI for his head and spine on 12/29 please pray and send good thoughts his way that the scans are clear. On 12/30 he will have another hearing test. Some of the chemo causes hearing loss, so they will be establishing a base line.

Connor's 1st round of Maintenance Chemo will be on January 4th. He will be admitted to the hospital for an overnight stay. He will receive 6 hours of the Chemo drug Cisplatin followed by 24 hours of fluid.

The best thing about today: Connor feeling good
Something exciting: Greg found a shortcut