Monday, April 25, 2011

Changes abound ...




Spring 2011 has been a blur. Even with the unpredictability of this crazy weather, change is constant. The Daffodils and Tulips are blooming right on course.


I have to slow down once and a while and take note. Life is sometimes a blur, and with Connor's increased energy our lives continue to change.




Connor participated in swimming lessons for two weeks with his school. It was such a wonderful experience for him. It meant more than just learning to roll onto his back, or open his eyes in the water. He was able to be free, he could stretch and move, without having to worry about his balance.




Connor has surgery this Thursday to remove his port. Throughout this process I've taken that port for granted. It's behind the scenes doing all the dirty work. Delivering drugs to my kiddo, providing easy access for pain medications and anaesthesia, and allowing for relatively pain free blood draws. Having it has been a huge part of this process. Removing it comes with mixed feelings. It's a bit like removing training wheels from a bike. Are you sure he'll be o.k with out them? ..But he's needed them this whole time.. What is it like without them?..




Connor's hair is coming back in full force. Eye lashes, Leg Hair, neck hair. I look at him today, and hardlyremember what he looked like yesterday. I come back to this site and see pictures that were taken just a few months ago, and I'm in amazement with his transformation in such a short time.




His last Therapy visit went really well. The last few years we've been fighting just to maintain his strength, and this was the first visit that we are gaining the upper hand and actually seeing improvement. It's a long slow process but we have hope.




Spring is bringing changes to Connor's outlook.. in the form of new glasses!! He's so excited. (I've never met a kid so excited about getting glasses, but he's wanted to have glasses "like Mommy and Daddy" since he was little, so I shouldn't be too surprised).




Spring has brought a lot of changes in our lives, and I am hopeful for continued growth in this Summer.