Strap on your body armour

We floated to the Radiation office yesterday. We had a huge deluge of rain yesterday morning.

Connor added a new tattoo to his collection (a flaming eyeball).

He was a champ getting his access tube placed, that kid amazes me.

Monday's take a little longer in the Radiation office. They do realignments and additional tests.

Yesterday's wake up from Anesthesia was quite alarming. In Radiation there are four Anaesthesiologists. They work together as a team to "personalize" your child's Anesthesia experience. Connor has generally been experiencing some emergence delirium post anaesthesia, but yesterday was out of control. Kicking, hitting, Screaming, trying to pull down the curtain, etc. After talking to a senior member of the team they are going to make some modifications to his Anesthesia combination. I guess we can return our body armour.

Many people have asked why Connor has to have Anaesthesia every day. Believe me, this was VERY alarming to me too. Due to placement of his tumor (Posterior), Connor must lay face down in a face mask for up to 15 minutes. There is a large amount of weight being placed on his face, and shoulders. In order for the radiation to be effective, there must be no movement during the treatment. So a combination of it being a completely uncomfortable position, and something that requires a child to be completely still leaves most children under the age of 10 requiring daily anaesthesia.

After our wake up battle we headed to lunch (at that point our child's personality had resumed his body). Connor enjoyed walking around the Children's Garden with his walker, they have it decorated for fall.

Next we headed up to Children's Oncology, for a Consultation about Chemo, and the nurse administered Connor's first dose of Chemo (Vincristine). That was a snap. The doctor said he really shouldn't experience many side effects from the Vincristine, maybe some temporary tingling in his hands or feet. His white blood counts we a little low (most likely from Radiation), so we were also advised to keep him out of groups. I have my bubble on order lol ......

We also met with Casey from the Children's Cancer Association. They do great things to Support children and families effected by Cancer. They offer a Chemo Pals program where the children are matched with a mentor who will spend time with your child in the clinic, hospital or even at home playing games, reading, doing art or whatever interests your child has. They also offer a caring cabin for families to stay at on the coast, for a little R&R.

We were at the hospital for about 7 hours, so all in all it was a long day at the Hospital. Our big discovery Valet Parking!

A funny thing Connor said yesterday: These are great "Chickaladas" !- Translation: These are great Chicken Enchiladas!

The best thing for Connor yesterday: Acquiring 2 Star Wars stickers to add to his walker !!