Freedom

Connor had his weekly trip to the Oncologist on Monday. His blood count is slowly creeping back up: This week it was 135, still well under the 500 range to go to school, but heading in the right direction. The ANC count will need to be at 1500 in order for him to start his next treatment on 3/29.

A lot of people have asked about what his Chemo schedule looks lik, so I've added his Chemo schedule to the right. It's only a tentative schedule of course, since his treatment is dependent on his ANC being at least 1500. In the event he doesn't meet the 1500 ANC mark, they will push back treatment, or lower the dose he receives.

This was an exciting week for Connor. He got a new bike. The trike was getting a little too small (or should I say his legs were getting a little too long).

Since Connor has trouble with mobility his new bike has given him such a sense of freedom. He asked to ride it almost everyday. We took him to the park and he had a blast. He was even able to tackle the uphill portions. Most importantly he's able to use the handbrake effectively. Connor's favorite parts: The cool blue flames, and the fact he can do tricks. He got so comfortable with it at the park, the next thing I know he said "Hey mom, look at this!" and there he was riding with no hands, his hands folded behind his head. Him: So confident, and proud, Me: Very nervous (but happy)!!!

This whole process has challenged us to be creative. We are constantly coming up with creative solutions so that instead of saying "no you can't do that" , we find alternatives so we can say "Here just use this", or "try it this way". His bike was a good example. We took away the need for Connor to need to balance, and best of all his bike expands to adult and will grow with him.

Another modification we made was for Connor's favorite sunny weather activity: Silly String fights. My son loves the silly string. He has been known to spend all of his allowance on the stuff. We picked up a few (about 7 ) cans, only to find out Connor didn't have the strength in his hands to push down the applicator. Daddy came to the rescue with his spray paint trigger handle. Connor was able to squeeze it with ease.

The weather was so lovely this week. We all got out in the yard and pulled some weeds. It feels so good to get out in the dirt.

Something we are looking forward to: Taking a trip to Long Beach, WA on Friday.

If a Leprachaun gave Connor 3 wishes what would he want:

1. A trip to Disneyworld

2. A trip to Legoland

3. A trip to Hawaii

(I think he likes trips!)